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Showing posts from September, 2007

Hepatitis C Virus wiil peak in 2015

Ok , you find out you have hep c in your blood, you go through the motions, where when why how did I get this ? You may experience some panic, and fear that you are going to die, many things go through our minds when we are told it is hep c . This is meant to help you as you go through these devastating emotions, first thing you do is find a good place to learn and listen to other hep c survivors, it is truly the best thing you can do for yourself. Doctors and nurses handle you in a medical manner, they are much too busy to sit down and answer every single question you might think of, some have the best knowledge and the bedside manor of a stump. That is why we are here to help you understand what is going on inside of you and hopefully suggest some things to make this as smooth as possible for you. We at Out Of Bounds have been where you are we realize the confusion and worry, it is our goal to show you the positive side of this diagnosis. Many people are curing, many are not , it is

Newly Diagnosed

What happens when you get the news Via Doctor or Red Cross ? It seems we all have our own coping mechanism's , mine were disbelief, there must have been a mistake ? Shock Denial, Anger, Grief, Panic, Fear, Guilt, all the shock has turned into a reality, then follow steps 1 through 9 again and again. How did I catch hep c ? Am I contagious ? Who should I tell? What are my options? Why me? How long does it take ? Feelings of uncleanliness Lowers self esteem Fear of telling family and friends As I am typing this I imagine all chronic illness come with this emotional let down. The next step was to arm myself heavily with all the information I could find. knowledge is power, Reaching out to a support group , is key to the rest of our walk through this hardest thing we have ever known in our lifetime. Board Certified Hepatologist's that is very important because they are loaded with the latest treatment options for you, Do not waste time with a family doctor or a Gastroenterologist

Latest news:

"Hep C Out Of Bounds" .org . The Hepc OOB “organization” is involved more into advocacy and that is the direction we are taking with that facet of our work and the OOB.org site. I really do not want, nor can we have an interactive forum like we are accustom to on a site that is associated with these various .orgs. We will be closely associated with the Massachusetts Hep C Coalition, the American Liver Foundation, several hospitals, medical professionals and we are in discussions with some Universities. This along with the fact that we are about to begin in October a high school education program. We will be having booths at some high school and college “health fairs.” We will also be making some formal presentations at schools and universities. This will be done with the assistance, cooperation and involvement with several state agencies, the Hep C coalition and financially supported in part by some of the Pharmaceutical companies. Th

"My Story"

This is my story, in a condensed version... 1992 I found out I had hep c, I treated four times with the alpha interferon which was the hardest time of my life. I was a non-responder. Next treatment was 18 months of Pegasys and copegus, I had cleared in the 10th month. Finished out 16 and soon relapsed. Waited two months and went straight to infergen 700 shots in 700 days, I was clear from the fifth week. As soon as it was over, I relapsed again. Updated Information=The "Relapse" in fact never happened My test results came from the University Hospital, and they were not correct, I'm not sure if someone elses blood contaminated my test or not. I wanted to clarify that my doctor Bennet Cecil was not responsible for the test errors. I'm a 1a stage 3-4 cirrhosis. I contracted the disease from a blood transfusion in 1984 in Florida while having complications with a tubal pregnancy. I cannot treat again until something new comes out. I'm planning on being evaluated for

Links:

Below you will find a few different links that you will benefit from if you wish to inquire about Hepatitis C and Treatment: http://www.hepcoutofbounds.org http://www.hepcstraightup.com http://www.pegasys.com http://www.pegintron.com http://www.rxassist.org/register/patient_reg.cfm http://www.hepatitisdoctor.com http://www.nlm.nih.gov http://www.henryford.com/body.cfm?id=33946 http://www.mayoclinic.com/health/hepatitis http://www.pubmedcentral.org http://www.liverfoundation.org http://www.unos.org http://www.clinicaloptions.com http://www.lola-national.org http://www.liverhope.com http://www.transplantfund.org http://www.hepatitis-central.com http://www.hcadvocate.org http://www.hepcchallenge.org http://www.intermune.com/wt/home http://www.infergen.com http://www.medicinenet.com http://www.epidemic.org/ I know that you will find useful beneficial information from the resources listed.