" HEP C OUT OF BOUNDS.ORG"

Good morning, Last night was the OOB support group and as usual it was packed. We are coming up on three years. I wanted to just tell a couple of stories I heard there that really threw me. First there was a young girl. She went to have testing done and before they even had the results a nurse practitioner said she had end stage liver disease and would die within two years. She switched doctors and hospitals and found out she had geno 3b and has no fibrosis and she has over a 70% percentage of clearing. Talk about bad info. Then there was a man who did two shots, he vomited and they took him off of treatment. Which is definitely the worst thing to do. First they should have taken him off the riba and see if that was the problem. If not lowered his Infergen dose, but he has stage four fibrosis which they told him he had cirrhosis. Totally horrible protocol. The good part of these stories is we got them hooked up with a REAL HepC doctor. I heard more bad and incorrect info...

Lou I wish I could say it surprised me to hear that, when in fact it is more rampant today than ever before it simply means there are not enough  Hepatologist's or Gastrologist's  to handle the growing numbers of hep c diagnosed patients today. The projected increase due to awareness and advocacy work has proven to be very effective, but not to the point that it is no longer needed, it is more important today than ever before as your post suggests the physicians assistant is taking all of the overflow, and they are not qualified to visualize the entire picture. It is a shame that people are given the wrong information and might be led astray from doing the treatments that could possibly save their lives. It saddens me, and it has happened to me as well, nothing was maliciously intended but they are humans just like us and they are not without error.  When a persons life is on the line if they don't have a computer or support group, they are lost in today's w...

Great Saturday Morning "Out Of Bounds" You know I have been told many times by people that meet us in chat and then later join us here on the site, that when they first came into the chatroom there was something different about it that they couldn't explain. As you well know I am as silly and funny as I can be for us that have been around for a long time together. We are comfortable with each other and our main goal is to keep you smiling. That is a very important part of doing the chatrooms, leaving for the night with a smile on our faces, and hopefully a renewed sense of normalcy. But back to the subject when we meet these people that say "I felt something in the room that was comfortable and special, it was like I was supposed to be here for some strange reason", when I hear that I immediately know what they are saying. I recognize it as another person that has been led to us, I have seen this a hundred times since 2004. It isn't a coinciden...

Good Morning "Out Of Bounds" Look inside yourself today and find that one thing you have been born with as a gift, open it up and share it with all of us . I know there are some good qualities in everyone, especially the people that give their time here making OOB a site that is very different than any other on the internet. We believe very strongly in the freedom of speech here, and you really don't see a lot of it on a support site, We feel it is everyones right to voice their opinions, and to have a place to vent or just coment on anything you wish. We have some very powerful messages here, and sometimes it might seem that we are all happy go lucky glad to be here type individuals, which is fine to an extent, but we are family and we have differences, I for one am probably the most guilty of sugarcoating. I admit that, hell life is a bitch sometimes, and for people on treatment it really sucks, so that's the reason our open threads are so important. We need to hea...

Good Morning "Out Of Bounds Family" It's Saturday, what is in store for you? If you search for ways to improve your life, you will find it. If you worry what's going to happen next, then something is about to land in your life that might not be so pleasant. If you plan your day in a positive way, sure something might change but the list will still have the focus on your direction, it's all depending on your attitude. Self talk, thoughts, and desires are very powerful instruments if they are used in a positive manner. You first think of one thing that would make a difference today. Write it down, read it out loud , smile and act on it. It can be something small or something very productive, the first step is to let your mind open to new ideas. Allow yourself to dream, then omit the frivolous , keep the attainable goal write it down read it out loud and act on it. Dare to step out of the ordinary , dare to change, dare to act. lol I'm...

Joyous Wednesday Morning "OOB" This is a picture from our blogspot, I typed in: Hep c people and looked for images found some really nice ones, and then saw (OURS) That was a nice surprise for me as I didn't know it would be there. I don't know if you have ever seen the blog before, so I wanted to share with you the meaning of the upside down orchid. As you know orchids are very delicate and fragile "like humans are as well" and if not properly cared for will simply wither and die if not kept in the right humidity, warmth, and sunlight. The upside down orchid is all of us affected by hep c, we are trying so hard to survive through the most difficult of circumstances reaching toward the light to grasp every ray of hope, and collecting the water from each other when times get to hard. Fragile loving humans that care more for each other sometimes than ourselves is why we are here, it takes every single one of us to support the most fragile in the best way we k...