" HEP C OUT OF BOUNDS.ORG"

So I crawl out of my hole this Am to be buried in  drifts of whiteness, so much wind your face stung just to shovel five feet through a five foot drift, hey this is New England, we are proud of our toughness, passed down from generations of rebels, many who started the itch that began the revolution! And we stand on the cusp of a new revolution, one to create fairness in healthcare, equal care for all, not just the rich, or the very poor, just the sick and the equal, as we are all equal.....whether its Hepc or another battle, the treatment of all is not a varying standard anyone fair minded person can accept unless its the same for all. Many have to wait months or years to get seen, one might think its conspiratorial , waiting for the dreaded low life to die for lack of funding and yet the CEO's are making so many millions of dollars to sign some papers. Perhaps they are smart? Perhaps lucky, I don't really know. I am certain there is a great deal of unfairness in ...

                 Good morning my friends, I hope your week went well. I did something rather unusual yesterday. I put up a fence to expand my garden for the upcoming spring. That’s right, in the middle of January, I’m putting up a fence! I’m sure my neighbors thought I was nuts, especially since I had to dig through a snow drift just to get it set up. Good thing the panels were pre made! You know what was cool? I actually enjoyed it very much. It put my mind in a wonderful place full of flowers and green things filled with life even as I worked on what is now a deceptively barren landscape. I saw the things that would be growing there and it was a wonderful image to project in my minds eye. My wife smiled as I set up my plans for this new and amazing garden that lived alone in my mind. To me in a way, it was so real! I could almost smell those flowers and taste the very vegetables that I hadn’t yet planted. Life was s...

 2015 is a brand   NEW YEAR  The best is yet to come, healing the world of hepatitis c.  We made it to 2015   I'm amazed  how fast time is moving now that so many people are  clearing the virus, it is nothing short of a miracle, and I am so  happy for all of my dearest friends and loved ones, that they will  not have to go through the more difficult treatments anymore.  Celebrate Freedom With Love and Blessings For Your New Year Kat annd "OOB" 

 

 So today tried to maneuver through the health insurance process. It is tough with all the changes that I have encountered through the last year. Most importantly we as Heppers have been trying to navigate through the changes in our ability to fight this virus, all the new drugs, the many ways some have won and the struggles the tough who keep fighting have had to overcome. We are a very diverse group, some have won, having a preferable set of DNA, some have lost and keep trying. We have to keep fighting, for the newest drugs, the costs, and the right to live. I have had the privilege of being a Lab rat, don't give up, please, as we are all intertwined in a new world of hope. I want you all to win, I want to win, but more than that I want our stories, our history told, so that research continues until the last hepper succeeds, we want you to live to see your grandkids smile, to reverse the transgressions our disease placed on your families, or your friendships. I hope for all of...

  Good morning OOB, I hope all is well with you. I was just thinking about beginnings. We have so many of them in our lifetimes and in a way these are very precious moments, though some may not seem so at the time, such as when we receive a diagnosis for hep C. There’s so much confusion on those first days when we wonder what might happen to us. Those days before we seek out the support of others when we’re left alone with our own thoughts and our own fears, always wondering what might happen next and not sure how to find those answers. This is a beginning like no other, for though there’s fear. Though there’s confusion and yes even sadness, it is in this beginning that we decide to fight. It’s in this beginning that we set a course like no other. It is in this beginning that we decide that we will take our lives back and that we know we’ll never take losing as an answer! So we strike out on a new path, seeking the answers that will propel us onward to the finish lin...