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Showing posts from 2010
"The Race For The Cure Is On"
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Great Wednesday "OOB" & those who consider yourselves OOB'ers as well ! 2011 is right around the corner and change is in the air~~~~ I LOVE CHANGE "Out with the old and in with the new" People getting their lives back after long treatments they will feel alive again and newbies standing in line for Telaprevir will be coming here Like a breath of fresh air or a new idea 2011 is going to be the best one yet ! I love the smell of a fresh rain or snow it is God's way of cleaning the air and the earth and watering the trees that provide our oxygen, purifying the earth for many future generations Oh I know that's a ways off but preparing for winter to be over with keeps me pretty busy, getting healthier and working out. I'm not a quitter even after 6 years of tx and breast cancer I'm healthier than I've been in a long time, because I make myself do it for me and my family. AND YOU CAN TOO ! I am more determined than ever to get m...
Prize Writer Mggieblue
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We are never alone..... I am here in the wind and the waves, splashing against the rocks, trying to surround myself with buoys and blankets. Hunkered in for the hibernation stage, as many of us do. Tx has taken its toll but I fare well...kickin dragon butt, feelin it and you all remain in my heart and mind always. We travel this path alone as a milkweed pods breaks open into the wind and a breeze flits the feathery white seed away to its new home, hoping for regrowth. Isnt that what we do?...we live and spell out words, and , children, and friendship in the hope of generating growth that continues on? Each of us finding connections to carry us to the next day, the next season, the next generation. Questions remain.... people misconstrue intentions, blow things out of proportion or do damage control. This is what I have been seeing lately as I have stepped back a bit and often read but my fingers are too tired to post.My mind too foggy with meds to show some clarity...but as I read here...
"OOB" WARRIOR mggieblue
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I only need to watch the news for a short few minutes to be reminded of how random life really is. sure i have a tendency to over think but my depth is clouded lately by a chance of storminess and interferon tornadoes, riba rumblings and the hope of another yet ever so powerful drug to play havoc with a very small invader. We wage war everyday, with our virusses, our thoughts, our world and its troubles, our minds hyper foccussing, our little issues and the big ones...so how does one make sense of it all. a bull crosses the road and a travelling stranger let into the next life by a bad second bit of timing.....so as i wander through my world, watching and listening with the only eyes and ears I can perceive this all through I am constantly reminded of what keeps us going. I have always, when struggling tried to find the good in every day. Even if its a small wild ripe strawberry by the roadside or a twinkle in an old mans eye as you smile at him for no reason but to do it. Why do i do ...
The Compassion Through Adversity
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Being sick/makes you better Aren't we a smart bunch? Street smart, smart assed or book learned and well read, there is an intelligence, an enlightened wisdom that sweats from the skin of the Heppers in general and of the OOBERS in particular. Time and again I am truly amazed at the wisdom I see here, we all seem so bright!! Real flourescent lights!! Yea baby, tell me it isn't so. Why is it that heppers seem so smart all the time?? Don't we have the right and the duty to blow our own horns, to celebrate ourselves and our sickness , to show others our resolove, our acceptance, our desire to take up arms , to TX ? To show the world a cured hepper, that is my goal. I guess having hep or any disease is a way of hitting bottom and we all know how great it is to touch down,mmm, lol, but... It's all up hill from there, it will get better and you know , it does, one way or another. Win,lose or draw, this TX experience makes us wise, the meds scramble our twisted brain ...
We Are The World
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Hey "OOB" Love that attitude and compassion you share every single day. I could not do this without you. I'm posting in the hep c latest info file something that will hopefully help you understand what a small part we actually have done so far as in helping people make it through their treatments and beyond. Everytime I say "Can you hear them coming?" Well theres proof we are in position to help as many as possible when that time arrives, and believe me when Telaprevir hits the streets we will be busier than ever before sooooo grab your asses and smile this is going to be a lot more fun with so many people being able to clear and cure hep c !!! I'm praying it will be used for non responders down the line, I'm sure they are ironing the kinks out before retrying past tx'ers. They need all of us for better living and healing. YAY I'm ready are you ? Saddle up the strongest stallions, and bring out the best of what we all have to offer, knowi...
Crow's Antics "OOB" Style
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That's it Daily Opening RANT, Kritters, Actually it's a cheap attention grabber. So shoot me, nowdays you have to shake your booty and use every gimmick you/me/we can to get our message across-oops what message ? indeed ! My message is a massage, I would like to be cause free and not have to have a cause, but I guess I have become a HEP BERET, one of the proud, the few the battle scarred elite, well you are all part of the same gang. What makes us different at OOB ? Our biggest asset is our people, for some reason OOB attracts an eclectic, wacky, smart (ASS) , funny, fun loving pack of deviants (hey I didnt say SEXUAL-yet) you will not find another bunch like this, and I have seen several variations of the theme arise over the past year and its always a similar bunch who coalese and stick, like a giant snowball. Enough of this, we all know this, its obvious, ain't it ? But its weird too. Do you feel it too ? The unique pull, we are like bi polar magnets, dynamos a hummin...
The Best Hep C Support in the USA & Canada
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HEP C "OUT OF BOUNDS" HepC Out of Bounds is a support forum for those with or concerned about Hepatitis C, we are here for you and we have been there/done that before. We will share our experiences with you to guide you into making the best choices available for you to succeed in living as healthy as possible with hep c or beating hep c into undetectability forever. It's time for a change and "Hep C Out Of Bounds" has come back for you. Positive thoughts and actions are key in living with any illness until we defeat it ! We are in our fifth year of hep c support and as always the best we have to offer, come check it out and you'll see for yourself. Chat rooms are running fulltime, we are open as " OOB Comedy Room" on Friday and Saturday nights at 10:00 pm. est. There is nothing better than a positive friend to talk to while you are deciding on your future, one who knows the treatments available, and has done them first hand. We welcome anyone suffe...
"Someone Is Always On Your Side" By; Greg
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There is a good chance that everyone reading this has undergone treatment,is undergoing treatment,attempted or are contemplating treatment . I am constantly bombarded by questions about aspects of treatment that somewhere along the line certain facets were not discussed or stressed enough during early doctor visits. Going thru treatment may bring along some friends that are rarely mentioned and some times ignored by the Doctors in which we place our trust. For newcomers by and large the treatment is good, the information is sometimes poor. All too often a common circumstance is the spouse who was supportive in the beginning, becomes less enthusiastic as time goes on due to the lovely bunch we've all become. We are at war inside our bodies and casualties are bound to happen. We are not the people we were before we started and are desperately trying to live up to the person we used to be. Relationships are stretched to the breaking point, because the untreated spouse has very little ...
Chuck's Inspirational Message Of Love
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Good morning my friends, I hope you had a good day and night last night, safe from all of the ghouls and goblins! You know, I was feeling a little curious about myself and wondering just why I make it a point and consider it a privilege to write a message to you once a week. And the answer rang out quite simply to me. Because I’ve been there. Because I’ve experienced the nightmare of hepatitis C. Because I believe in never leaving anyone behind as they fight for their lives. And because once a week I realize again the power that flows through this place. "OOB" At times I wish I could interact with all of you just a bit more then this single weekly message, but unfortunately, with the way my world is right now, I can’t. It’s not that I don’t want to or that I place more importance on the other projects that I am working on, it’s just that I live in a world we call the village. We have done exactly what I said people will do in a recession. Banded together with those who migh...
The Daily Opening Spread By; Greg
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Good Day OOBers and Friends: I have been mulling over my DOS for most of the day. Wasn't feeling well,took the day off so had some time to think. Pretty well had it laid out until this evening. Something tells me to go with tonite, and I shall. My only real planned activity was chat and this DOS. Not feeling too hot, I napped and when I awoke it was late and chat was empty. Damn- Friday chat is part of my life. I read a few posts,returned and found a couple friends had arrived. We settled in for time together without any real purpose it seems. Just time together amongst friends. Laughing, reliving our childhood, confessing our transgressions, mostly enjoying our diversity, our senses of humor, and the safety one feels when circled with people who know. Folks that you have shared secrets, or openly belittled yourself, for the entertainment of all in attendance. Everyone brought together by a virus, a dragon who has grown within. We have learned that the only folks who truly under...
~Greg~
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Another cold nite coming my friends.Lucky if we much above 40 degrees now-oh well.Not like its never happened. Another winter of fires in the fireplace( best place for that). Movies and long ,warm nites here with my friends. Those friends: How did we come to put so much trust in someone we've never met and odds are won't ever meet? What's even stranger is the reluctance to just let go. No one know's who you really are,so why not dump it all? I know its a lot easier said than done.Its still the best chance for cheap therapy you'll ever get-haha. Everyone one of us has a story, the beauty of something like this we cross paths, we share stories, we are not alone, not freaks.Win or lose, one is forever changed when the battle has been waged.It may become one of the bigger milestones in your life, or perhaps a diversionary side trip thru your own psyche. It is life changing,once you are in, you never really get out. The people we meet and learn to love so unconditionall...
The Day Stigma Died
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Crow & "OOB" Sure thing Crow, Wish it were all so easy to just shut er down and stop caring, go on living life as if nothing were killing our livers and brains, sure would be a wonderful day to be hep c free, cancer free, hiv free, running through the fields of wildflowers with no cares in the world. Then reality jars our minds when we lose another commrade in battle for their life , we cannot run or hide from the facts, 170 million people will be lost on earth from hep c alone and in severe pain simply because no one bothered to teach them to fight back or how to load their weapons. Stigma will control if we do not It isn't happening as long as I live, and I am hep c free four years on Valentine's Day.. The world likes to think hiv comes only from gay sexual deviants and it's a good way of getting rid of them, hep c is all about junkies and who cares because it is a good way to rid the world of them too, you awful smokers too please die from cancer ...
Newbies Welcome in "OOB"
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Well hello there newbie we are here for you ! Anytime you have concerns or questions please ask and ask often, lol we will do our best to see that you have been taken care of. Everyone that needs some T.L.C. and understanding can find it here for sure, we thrive on humor and positive atitude because it helps us be happier and more focused individuals. Being able to smile when you are going through illness or treatment can mean the difference in succeeding to regain your health , and we don't take this lightly. Over the last six years I know so many of you have made it and gone on with your own lives helping others, and that is the most precious gift any of us can leave behind when our time on earth is over. We make our mark on this nano sized virus and it's imprint is forever passed down until the virus is irradicated from the planet. That is the kindest gesture we can do to help people see that they too are winners, and they have the power to make a difference in so m...
~ Inspired ~
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Awesome Monday Chuck & "OOB" Rebirth and choosing a better life begins right now, we have all been given free will and large brains in order to re-invent our thinking and acting when things get stale or a relationship dies, a family member passes and our world changes because we no longer can touch that person or laugh with them. It is the cruel part of life and nature. Only one thing more deceptive then nature's eye is when we have "little" faith, there is an everlasting light and love far beyond what we can see, that stops all hope for the world when there is nothing better than simple human existence. There is a greater plan for us ahead when we learn to move toward earthly happiness it may feel like everything is as happy as it can be, but then it can all change and we must face many difficult decisions in our lifetime in order to survive. Life isn't supposed to be a constant battle but a constant learning and evolving energy that sees it's r...
Colorado Aspens By: Chuck
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Good morning my friends, I’m quite sure your doing well or at least as good as you can be! I now have a visual and yes, fall is approaching in our little valley as is evidenced by the aspens as they turn golden and march slowly down the peaks toward us. It really is interesting to watch an advancement of this type just because it gives one an actual visual of just what nature is doing. At times it’s hard to perceive the workings of nature, mainly because she does so much in the background. Unless we are aware of her, we really don’t see the miracles of life being performed all around us every day. Even as we breathe it’s hard to actually see the interaction that takes place between the trees and other green stuff. Were it not for the trees we wouldn’t have a lot of oxygen to breathe and likewise if it weren’t for us humans, those trees wouldn’t have what we breathe out to work with. But the main thing is that whether we are aware of nature or not, she still works her magic all around u...
Our Purpose By: Chuck
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Good morning my friends, I was just thinking about the time before one starts tx. You know, that really scary time. I remember well what it was like when I first found out that the dragon was in me. I was scared and not willing to admit that I was. I was confused and was wondering just what might happen to me in the future. I had no clear plan nor any idea of what needed to be done next. At times like this we tend to put ourselves in the hands of our doctors but the sad thing is that many of them know nothing of the dreaded disease called hepatitis C other then it exists. But the day you get that diagnosis, it kind of turns your world upside down. It sends you off into a whirlwind of emotions and thoughts of the kind you’ve never had before. Thoughts about life and death. Thoughts about living with this dreaded disease. Thoughts about what the treatments will really be like. All of these things ran through me and then one day I woke up and said, "I’m ready to fight! I’m ready to t...
~Loving Your Attitude~
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Wow Chuck ! I sure love that attitude my friend, and I hope that people who are afraid to fight this virus do find us, we love nothing better than helping them through the times of uncertainty and thoughts of fear and crippling isolation that stigma tries to ruin our lives with . When anyone is diagnosed with a potentially deadly disease, it sure is devastating at the time, it also makes them aware of our human fragility and we find the strength and God's gift of natural born instinct for survival kicks in and with the help of so many lovely people here in "OOB" and our FAITH makes the dragon squirm in fear of us ! The positive self talk brings positive results ! Amen !!! Love; Kat
Louis Buratti Gone But Never Forgotten
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Hiya "OOB" I hope this Saturday is one of fun and pleasure for all of you, if it ain't right fix it. We are grateful for waking up with a new attitude and a new start for the rest of our lives. I know I am reinventing myself in constant change for the better ! Wheeeeeeeeee got the attitude and the guts it takes to be winners, no matter if we are clear of hep c or not, our hearts and minds are pumped and excited to be living each day to it's absolute fullest potential I love that, because when we were so young and dumb it never entered our minds that we must be focused and determined to survive because we all think we're invincible at that time in our lives, it takes maturity and some fucked up news we have been infected with a virus before we make the changes in our life to live the best we can and always focusing on today right now.... If things aren't as wonderful as you would like in your life, it is up to you to make the changes necessary to be closer to y...
"Thankfully Accepting Miracles"
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Today I've learned how to pray Thank you Our Father whom art in heaven hallowed be thy name, thy kingdom come thy will be done on earth as it is in heaven. Give us this day our daily bread thank you and forgive us our tresspasses thank you as we forgive those who tresspass against us thank you and lead us not into temptation thank you and deliver us from evil thank you For thine is the kingdom, the glory, and the power forever and ever thank you Amen Love is so very abundant and blessings are within us, to share with you All the glory goes to HIM Our Father Love; Kat Host of Delphi "Hep c Out Of Bounds" http://forums.delphiforums.com/hepcotb/start
Tattered Garden By: Chuck
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Good morning my friends, You know, I just took a walk in my garden. Not the usual walk where I look for problems that need to be addressed, but instead I actually LOOKED at it and what a surprise it was! I mean, mother nature wasn’t exactly kind to this garden, beating it with high winds, hail and heavy rains in between the long hot days that seemed to virtually sap the very life out of everything. But I kept working on this thing, giving it all the love I could and doing the little things I can to keep it going. In a way, plants are a lot like people. They have this incredible desire to live and a seemingly endless determination that overwhelms the problems they face as if there was really no problem at all. And the other thing that amazed me was the appearance of the many creatures that desire to share an oasis of this type. Bee’s are abounding and there are incredible butterflies fluttering around in the flowers. There are humming birds and for that matter, hummingbird moths floatin...
Diamonds In The Rough
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Thank you Chuck, For your beautiful insight , you and I have been through a lot over the last few years, the good the bad and the rebirth of a new wave of helping others learn how to empower their own lives. That's the gift ! Positively showing unconditional love by giving it all we can to hopefully change the way people deal with chronic illnesses, a snag or two every now and then is expected and dealt with swiftly to get us right back on track toward healing the pain and stigma associated with having hep c. I am so proud of you for stepping up to the plate every single week without fail you my dear friend have been a guiding light in "OOB" for all who come here to hear your message of nature's finest gifts . Loyalty and determination are things I admire most in people and you show people by your wonderful writing just how it's done. It doesn't get any better than that love Chuck, I want you to know how much we love you as well. (You are the diamond) Hep c Wa...
" I'll Be There "
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Good Friday afternoon "OOB" Here goes the real dirt the raw emotions of a woman that will fight to the death for you to make it to SVR. I am working very hard on the book now since my attention span has returned and I'll just let you have it as it comes as well straight from the heart. "In The Raw" I opened my heart to all of you, you in turn have done the same and we together have built the most amazing website for people with blood borne illness in the world. We never tried to be the biggest...just the best and I'm telling you we are most certainly the best ! We get down and out at times we're human, but when you surround yourselves with truth and compassion for others there is no time to feel sorry for yourself. Only time to share each others stories of conviction and determination it takes to help you along the way. I believe everything that happens to each and every one of us is written in the book of life way before we are born it is our mission on...
Wanted Dead Or Alive Dragon Hides
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As you can probably tell we are still the strongest warriors on the planet and I am running with the torch Lou carried for four years. He always said he kept going because he was grooming me the whole time to be the ONE without me there was no "OOB" I'd smile and carry on never truly believing that because it takes the purest love and dedication to keep on keepin on for all of Gods Children and I'm blessed daily for any tiny difference I've made. Divine Inspiration and Unconditional Love is key creating change for others that are coming looking for help with HCV. I did not want this responsibility you gotta be nuts to keep fighting after you've won the war, but how could I leave my comrades behind, injured alone afraid depressed, it isn't in me to take off when everythings good in my life no way, would I ever turn my back on any person faced with a chronic blood borne illness. " Queen of Hep C " isn't very glamorous I must say but I am comman...
Way To Go !
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For 10 years I have pursued this dream of a cure. I have been mocked, ridiculed, thought to be a mongo J. Honestly, I do not care. I have yakked of going with the flow, First, the old philosophers were right that the way to live your life is from the future backwards. If you start off where you are now, and imagine what you’d like to do, you’ll get muddled and find yourself being driven by different impulses in different directions. If you just go with the flow of what comes naturally, you will look back in ten years, or thirty, or sixty, and shake your head and realize you were going round and round in confused circles. But if you have a goal and are consciously trying to work towards it your character will develop, so that you actually start to want new things, to enjoy new things, to develop new habits. And that’s the second point they got right. Virtue isn’t about struggling to obey a whole bunch of rules. It’s about practicing the habits of heart and mind and life which will for...
Dream On
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Well here we go again. Step right up and try your luck at the wheel of fortune, the great Mandala. As luck would have it , found a nice place to inhabit, called the OOB. How was your week? Best week ever in many ways. Think positive, visualize, prayerise and actualise- see me feel me heal me? MMM, works for me, every time. Don't forget to thank your/our lucky stars for all the breaks we oobers have been getting, and more to come Can you feel the heat? Top of the world Ma! Take this job and shove it, party on OOB, let's get our collective freak on! 'Woot Woot' and 'Stamp out Silence', 'Get 'er Done' and 'Turn on, Log In, Drop Out' , some common OOB e_spressions_ ok thats enough now, I am off to sleep, perchance to dream of you, OOB!!! Have a good, no scratch that/GREAT one!!! Until the next one, see you around the premises. Crow "OOB"
~ Love ~
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To us they are days of love that we spend listening to the whispers of each others hearts. As humans, we express love in so many different ways. From the way we look at a person to the feeling that is there when one gives or receives love and you know, I think it happens more often then we realize. Love appears when we manifest a tear as we watch another struggle. Love is there when our hearts reach out to another who might be struggling in a way that we ourselves understand. For we are a people who prefer to love and not dwell on the sadness of the world. We know it’s there, we simply choose not to dwell to hard on it when we have so much love to share in such a positive way. So never be afraid to shed that tear of compassion for another that might be suffering. Never be afraid to love one who needs you. Never try to hide that most valuable emotion that comes from our very souls for it is not a feeling that is made to be hidden. No, instead, it’s a feeling to be shared with one anothe...
The Garden By: Chuck
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In nature, it’s natural selection that determines these things but in a garden it just doesn’t seem to work that way. But in the life of a plant, perhaps being plucked is in some strange way that we don’t understand the same were I not here to pluck them. But really a garden is an ecosystem that we create. We do our best to maintain what our living creatures need and give nature that extra little push that she needs at times to create a beautiful oasis of life. And if we’re really lucky and really feel the life that we are nudging her to create, nature rewards us with beauty and life that can be beyond the imagination! And what a thrill it is to help nature work the magic that she does. To see the beauty that is life unfold before our very eyes! To realize that yes, we must have done something to create the harmony of life that she wants to see for she generally destroys that which is not harmonious or cannot fit into the world in harmony. As humans and especially as humans who have ha...